Professional Practice Gaps of Individuals Identifying Cancer Cachexia Assessment

Assessment of professional practice gaps of individual health care clinicians in identifying and treating cachexia in cancer patients

This survey is being conducted to assess professional practice gaps1 of individual health care clinicians and healthcare teams in identifying and treating cachexia in cancer patients. Cancer patients with cachexia is limited to adult patients for the purposes of this assessment.

There are no foreseeable risks for participating in this survey, and there are no benefits to you as a participant other than contributing to a greater understanding of the care of cancer patients with cachexia. All data will be collected confidentially and only reported in aggregate.

If you agree to participate in this survey, you will be asked to respond to a total of 58 items (maximum) which will take approximately 20 minutes to complete.  Items are primarily check box in format.

Individuals are eligible to participate in this survey if they care for cancer patients who are at risk for cachexia or patients who have been diagnosed with cachexia, including individuals who provide direct care or care as a member of a healthcare team.  

This survey is part of a mixed-methods assessment that is being conducted globally by the Society on Sarcopenia, Cachexia and Wasting Disorders (SCWD) and is supported by an independent educational grant from Pfizer.  

If you have questions or comments regarding this survey, please contact:  Tatiana Klompenhouwer at tklompenhouwer@mededgs.com 

1 A professional practice gap is defined as:  The difference between what a professional is doing or accomplishing (i.e. performance) compared to what is optimally “achievable on the basis of current professional knowledge.” Definition from ACCME (http://www.accme.org/faq/criterion-2-what-meant-professional-practice-gap), modified from AHRQ (https://www.ncbi.nlm.nih.gov/books/NBK43909/)

CONFIDENTIALITY

The data in this study will be confidential. All data will be collected using a password protected survey tool site with encryption and stored in a password protected computer. No individual other than the researcher will have access to the data. Once data have been downloaded from the electronic survey tool into the password protected computer, the data set in the electronic survey tool will be deleted. Once all data are downloaded, the IP address, which could link to an individual, will be immediately deleted from the data set in the password protected computer. Your name will not be included on the survey and other collected data. A code will be placed on each survey response and other collected data, and all responses will be reported in aggregate. While it is understood that no computer transmission can be perfectly secure, reasonable efforts will be made to protect the confidentiality of your transmission.

INTELLECTUAL PROPERTY RIGHTS

All intellectual property rights are with the Society on Sarcopenia, Cachexia and Wasting Disorders